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I have been on the internet for a long time now, trying to find a list of specialists that work with this kind of problem. We live in Ephrata, PA., close to Lancaster, an hour away from Philadelphia and Harisburg, I can get to NY or Baltimore & Washington. I slept fore and aft so that when the ship moved in the sea ( which was sometimes rough) I moved up and down and not side to side. I fell once, back against my dresser, which caused a bruse all across my back. Being in a room with a lot of windows seems to aggravate the problem, also if it is windy outside the sensation is worse.

I learned that I am looking for an otologist or neuro-otologist. Of course all of the doctors we have seen think that this is just circumstance - but they offer no real help either. Also, have any of you contacted the cruise lines to see if they can offer any suggestions? said the Flu had settled in the ear, causing ear irriation from an ear infection. for Antivert 25mg.), and 2 different cough medicines, cahnged meds. The rocking lasts with me anywhere from three to ten weeks although in previous times I have had temporary relief from symptoms in the morning after a good night's sleep.

I had Phenmonia in Jan.1902, recovered from that alright. It is very frustrating to have to go through this with no medical help.

My family doctor had never heard of this syndrome until I printed out the website for her.

bobbi USA - Sunday, October 05, 2003 at (EDT) ATTENTION: To all those with Mal de Debarquement Syndrome. Please try to find other resources until this site has been fixed. This started October 2000 after a cruise for 7 days.

Annie USA - Tuesday, September 30, 2003 at (EDT) I have been a memeber of this support group for over 2 years and just want to ask the person/people responsible for trashing our site to please stop. That slowed down the rocking, but my brain was so fuzzy I was unable to function. I am now weaning off of the Librium and I am still not rocking. He also explained that once you have MDD, if you go back on another cruise, you have a high chance of it returning. I would like for those of you who took a cruise to think about something ---- the sleeping arrangement on the ship. Also does anyone feel worse after having a drink or two? Jenny Jenny ([email protected]) Bradford, Oh USA - Friday, February 22, 2002 at (EST) I am now in my sixth week of rocking and rolling since returning from a trip to Florida.

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Hi, I have been trying to help my mother who has Miniere;s Disease. she is very depressed, and none of the local doctors have been any help. When she called her doctor (on Wednesday), he said, "Wait until Monday and see how it is".

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I am going to try the chripractor this week or next and hoping it will be helpful. I became focused on other possibilities like brain tumors, but my symptons weren't exactly like the symptoms that occur when someone has a tumor or any of the other 'normal' vertigo ailments that are studied in detail. My husband and I were thinking of starting a family this year.It seems that this is a condition which is directly related to their industry from what I have read here and at other sites. This time I have not had any relief from the sensation at all and at times the rocking feels quite violent to the point of me feeling nauseous.Don Schneider ([email protected]) Houston, TX USA - Sunday, March 03, 2002 at (EST) Wow, look at all these new people, Join us at [email protected] is a daily chat that goes to a whole group of MDDSers' Lots of feed back, and support and a questionaire to feel out Just go to the above address and put "subscribe" in the "subject" of the letter And you will start getting all the latest news I have had mdds for four years and have recently become symptom free Read Marilyn Kidsons case history, this is what I believed helped me also.. TJ TJ ([email protected]) Huntsille, AL USA - Saturday, March 02, 2002 at (EST) Okay, I found this site by accident, trying to find something to help with my condition. said my system was low from the Phnemonia, that I hadn't had enough time to get my strenth back and when this Flu came along I got a really bad case of it. I have been to neurologists and have had an MRI done and no abnormalities were found.Up to this time, she would get a bad episode, sometimes requiring a shot, and then it went away. The specialists he sends her to take hearing tests, and say well, there is really nothing that can be done. Thanks Cindi USA - Saturday, October 18, 2003 at (EDT) Spammers have started attacking the boards. Could you let me know as I'm having surgery shortly. She has been housebound, afraid to leave, not knowing when it will hit.But I have now graduated to a constant feeling of movement, not necessarily rocking but a definite movement at all times.I feel better in a moving car, but when I get to my destination, then the problem starts.I had no idea that anyone else suffered with this until I found this website and found out this had a name.I would appreciate any feedback anyone could give me.She cut out an article telling about endolymphatic shunt, and labyrinthectomy, and vestibular neurectomy. They caused us to lose all comments before 2002 (if anyone has copy of the comments up until September, 2003, please let me know). Robyn Cox ([email protected]) Melbourne, vi australia - Wednesday, March 06, 2002 at (EST) I'm back!I have been on the internet for a long time now, trying to find a list of specialists that work with this kind of problem. We live in Ephrata, PA., close to Lancaster, an hour away from Philadelphia and Harisburg, I can get to NY or Baltimore & Washington. It will likely be a neverending battle too - I have put in one little preventive fix to see if we can stop them. After writing that I was over MDD, two plus years after a cruise, I am now sad to say, "it's back".I have an appointment with my neurologist in a couple of days.I'm going to take all I've learned from you all to him. I don't want to start any drugs since I'd like to try to start a family.Up to this time, she would get a bad episode, sometimes requiring a shot, and then it went away. The specialists he sends her to take hearing tests, and say well, there is really nothing that can be done. Thanks barbara ([email protected]) Ephrata, PA USA - Sunday, March 10, 2002 at (EST) My MDD started 10/20/01 after a 7 day cruise. My wife moved her bed at a 90 degree angle to get away from my snoring. My husband rented a walker for me the first week, it was so bad. I've been out of work for three weeks now, and I hate this! I need to get back to work, but since I'm a Sales Assocoate and work on my feet all day, I can't do it. Since that time, anytime I travel or go on long plane trips I come back with the sensation of rocking and rolling as though I were still aboard a ship.She cut out an article telling about endolymphatic shunt, and labyrinthectomy, and vestibular neurectomy. She slept across the ship - port to starboard and on her side. I Lay down Or lay my head back,and feel like I'm going round & round in circles. The only time I get any relief is when I am in a car.




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